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Journal Article

Decisions, Decisions: African American Families' Responses to Mild Cognitive Impairment

African American families? experiences with mild cognitive impairment (MCI) have received little attention in the research literature. Guided by the life-course perspective, we analyzed qualitative interview data from members of 27 African American families including the person with MCI (PwMCI), a relative or friend who was highly involved in the PwMCI?s daily life, and if available, a relative or friend who had at least monthly contact with the PwMCI. Findings uncovered variability in families? MCI awareness, assessment, and need for role changes; the importance of reaching out to trusted others; and honoring PwMCI?s care preferences (e.g., who should provide care). Families held varying beliefs about engaging outside support; some families insisted on keeping all care within the family while others were open to the use of external services. We showcase how diagnosis acceptance and family decision-making are at the heart of how African American families respond to MCI.

Author(s)
E. Potter
K. Roberto
N. Brossoie
R. Blieszner
Journal Name
Research on Aging
Publication Date
2017
DOI
10.1177/0164027516655581